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Back in the Publishing business! 🤩
We have been slowly easing back into school activities since Emma's revision surgery sidelined her for months.
We started with numeracy and alphabet assessments (total retention, whoot!!) and moved on to personal stories review and word recognition. So thrilling to see how her skills and knowledge have stuck over time.
Visual fatigue is a whole 'nother story. 😔 We'll be working to rebuild that strength/endurance over time...
But, I am thrilled with how quickly we're getting off the ground again.
This is her first personal story post op. Not surprised that massage was her favorite part of Rehab, huh? 😄 No prompting as to what to write about, totally open-ended.
Her first story back in the school activities saddle. So fun that this was what she chose to write about first. ...and somehow I wasn't invited?? Whaaat??? 😆
Her story, her choices. 🙌 Respect them all. But, man... 🙄🤷😄
It's only a few days away now!
A quick sneak peek at our presentation slides for the American Conference on Pediatric Brain-Based Visual Impairment.
Dr. Roman and I are excited to share that it is NEVER too late for a child to improve their functional vision as illustrated in our daughter's life and her increases in functional vision, moving from middle Phase II to high Phase III in 4 years.
Will you be there?
I hope so! If you aren't a member of the Pediatric Cortical Visual Impairment Society, please consider joining! It is a wonderful organization advancing the importance of CVI for our children.
NEXT WEEK! Hard to believe this is just around the corner... but it is finally here! The American Conference on Brain-Based Visual Impairment/Cortical Impairment will be LIVE and Virtual on July 28 & 29 in Omaha, NE. Hope to see you there!
Dr. Roman and I will be presenting on the 28th a case study of Emma, our daughter, who at 15.5 started to receive instruction and interventions for CVI based on Dr. Roman's principles and acheived incredible improvements in her functional vision, moving from middle Phase II into high Phase III in 4 years.
So great to be attending in person (a surprise as of 2 weeks ago!)... I've missed seeing so many of our CVI family since Covid. xoxo
When you've got a team at home ready to pinch hit, you have the incredible opportunity to join an all star team of presenters at The Bridge School's AAC CVI Institute!
What an honor to spend the week with legends like Dr. Sarah Blackstone, Dr. Christine Roman Lantzy, Dr. Vicki Cassela and her amazing Bridge School staff, Gabriela Berlanga, co-founder of CATIC and new Asst Exec Director at The Bridge School, Tara McCarty, PhD student from PSU doing her Doctoral studies on AAC and CVI, Christine Wright Ott, developer of the KidWalk and ongoing researcher on the importance of upright, hands-free mobility, Matt Teitjen, and more.
Not to mention the dozens of professionals who came to learn how to better serve our kids and the 💪❤️💪Rock Star Families and Children 💪❤️💪who came to do the real teaching throughout the week. So incredible!!
At home, this crew rocked helping Emma understand how many days Mom would be gone using her Numicon. Dad up-leveled it with showing her California on the map, Tante Lori helped with Zoom calls, with Emma sharing back after our Zooms hitting all the "Mom" reels in her videos after talking about Mom in her talker.
Didn't know if I'd make it with all Emma has going on, so grateful. ...
Just opened: registration for the American Conference on Pediatric Brain-based Visual Impairment (PCVI). It will be a hybrid event this year, with both a live in-person conference with simultaneous streaming.
Christine Roman, PhD and I will be presenting a case study of an older student whose CVI journey didn't begin with CVI interventions/adaptations implemented until she was nearly 16.
A look back over 4 years reveals how those adaptations changed her life, learning and functional vision.
That young lady is our very own Emma. Excited to share our journey. 💪❤️💪
Well, this hasn't happened ever... a post on our website www.seecvispeakaac.om. 😯 Haaa! 🤦♀️
It provides a little history of how we got started, how it grew and evolved and what it looks like now.
I've alluded to the fact that it has been a long couple of years. We'll be headed back into the hospital again in 2 weeks.
Emma had bi-lateral leg reconstruction and a triple osteotomy of her right hip in February 2021. (not all went according to plan 💔). She had (revision) surgery on March 1.
While we've been busy managing her body, she remarkably increased her functional vision and use of her talker. 💪❤️🙌
Ridiculously proud of her perseverance through all of this.
So, before we go back to managing it crazy lives, I thought I would get back to the site (which has been dormant since before Covid), and finally get around to sharing a bit of how Emma's talker and vision moved from middle Phase II to high Phase III and what her talker looks like now.
Looking back, it has been an awesome journey; we've learned so much...
Keep on keeping on, everyone!
We are cheering you on! And, though you might not see us popping up on social, know that we are rooting for each of you as you give your child access to their voice and their world.
❤️ Lynn & Emma ❤️ ...
It's coming! If you need AAC apps, April and October are when to buy. Assistiveware's sale is March 29 - April 4!
We use Proloquo2Go for our system as it is highly customizable to meet CVI visual and motor access needs.
There are other systems which are also highly customizable (Snap Core if the first to come to mind), but P2Go is what we use.
Happy Spring into AAC! 😊 ...
Life with a child with multiple disabilities is not always easy. But, this girl will always have a way to tell us what is on her mind. Tucked in bed during this last challenge, always her talker. ❤️👀🧠💬🗣️ ...