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Did you know that April is CVI Literacy Awareness Month? If not, now you do! πŸ˜‰ 

Literacy needs for individuals with CVI are a good bit different than typical literacy instruction. Our kids need more supports to become print readers. It has to be an individual approach based on the child's CVI Range score and more. Read more about it in these Pediatric Cortical Visual Impairment Society posts:

https://pcvis.vision/educators-and-therapists/cvi-and-literacy/

https://pcvis.vision/cvi-and-literacy-phonemic-awareness/

https://pcvis.vision/moving-toward-literacy-goals-making-reading-accessible-and-fun-for-students-with-cvi/

#pcvis @pcvis.vision 
#cviliteracy 
#apriliscviliterayawarenessmonth 
#seecvispeakaac

Did you know that April is CVI Literacy Awareness Month? If not, now you do! πŸ˜‰

Literacy needs for individuals with CVI are a good bit different than typical literacy instruction. Our kids need more supports to become print readers. It has to be an individual approach based on the child`s CVI Range score and more. Read more about it in these Pediatric Cortical Visual Impairment Society posts:

https://pcvis.vision/educators-and-therapists/cvi-and-literacy/

https://pcvis.vision/cvi-and-literacy-phonemic-awareness/

https://pcvis.vision/moving-toward-literacy-goals-making-reading-accessible-and-fun-for-students-with-cvi/

#pcvis @pcvis.vision
#cviliteracy
#apriliscviliterayawarenessmonth
#seecvispeakaac
...

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Save the date! 

Excited for the Second Annual Innovations in CVI Conference: Navigating Teams & Transitions 

October 3 & 4, 2024 in Pittsburg, PA

Register to attend or sponsor: https://interland3.donorperfect.net/weblink/WebLink.aspx?name=E352536&id=35

Call For Presentations: https://docs.google.com/forms/d/e/1FAIpQLSd1_WWjruxjPNZaYTgH2x74zOylMztOv9MNkQ8sUyYT5_cXiA/viewform

Save the date!

Excited for the Second Annual Innovations in CVI Conference: Navigating Teams & Transitions

October 3 & 4, 2024 in Pittsburg, PA

Register to attend or sponsor: https://interland3.donorperfect.net/weblink/WebLink.aspx?name=E352536&id=35

Call For Presentations: https://docs.google.com/forms/d/e/1FAIpQLSd1_WWjruxjPNZaYTgH2x74zOylMztOv9MNkQ8sUyYT5_cXiA/viewform
...

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CVI adaptations go far beyond our AAC. 

Because, CVI. 

In tackling independence with dressing, Emma has struggled with how to handle her clothing in the beginning part of the process. 

Our always presuming competence awesome OT Catherine and I have been working on this for a while and have tried a lot of different things. We tried hot pink glittery tape last fall, before the last surgery, then laid off dressing for a while during recovery.

We picked it back up again this Spring, working towards MASTERY of these tasks. This past week we remembered the tape but I didn't have any on me.  So I grabbed some medical tape from our incredible PT, Linda (who also ALWAYS presumes competence -- see a theme here???), and borrowed a highlighter, coloring a block for each side of Emma's jeans to give her a visual cue as to where to grab to don her pant. 

πŸ’₯πŸ€―πŸ™Œ

That was the ticket! The bright yellow stood out beautifully even though it was just highlighter on nylon tape.

Ordered this Sport Vinyl and applied to her jeans. πŸ™ŒπŸ’―πŸ™Œ

Put it on sweats. πŸ™ŒπŸ’―πŸ™Œ

Then put it on the bottom of the back inside panel of her shirt and sweatshirt. πŸ™ŒπŸ’―πŸ™Œ

This is years in the making, but, man, what a lucky find of a solution. 

Maybe the luck of Catherine's ☘️ Irish ☘️ showed up for us in that session. 

Or maybe it was Emma's perseverance through all the trials as she waited for us to figure it out. πŸ™β€οΈπŸ™

We're taking the win, that much I can assure you! 

MASTERY, here we come!!!

Problem solve till you find what works. That's our motto!!

#cviadaptations 
#coloranchor 
#problemsolver
#cvicharacteristics 
#CVIneedsCVIinterventions

CVI adaptations go far beyond our AAC.

Because, CVI.

In tackling independence with dressing, Emma has struggled with how to handle her clothing in the beginning part of the process.

Our always presuming competence awesome OT Catherine and I have been working on this for a while and have tried a lot of different things. We tried hot pink glittery tape last fall, before the last surgery, then laid off dressing for a while during recovery.

We picked it back up again this Spring, working towards MASTERY of these tasks. This past week we remembered the tape but I didn`t have any on me. So I grabbed some medical tape from our incredible PT, Linda (who also ALWAYS presumes competence -- see a theme here???), and borrowed a highlighter, coloring a block for each side of Emma`s jeans to give her a visual cue as to where to grab to don her pant.

πŸ’₯πŸ€―πŸ™Œ

That was the ticket! The bright yellow stood out beautifully even though it was just highlighter on nylon tape.

Ordered this Sport Vinyl and applied to her jeans. πŸ™ŒπŸ’―πŸ™Œ

Put it on sweats. πŸ™ŒπŸ’―πŸ™Œ

Then put it on the bottom of the back inside panel of her shirt and sweatshirt. πŸ™ŒπŸ’―πŸ™Œ

This is years in the making, but, man, what a lucky find of a solution.

Maybe the luck of Catherine`s ☘️ Irish ☘️ showed up for us in that session.

Or maybe it was Emma`s perseverance through all the trials as she waited for us to figure it out. πŸ™β€οΈπŸ™

We`re taking the win, that much I can assure you!

MASTERY, here we come!!!

Problem solve till you find what works. That`s our motto!!

#cviadaptations
#coloranchor
#problemsolver
#cvicharacteristics
#CVIneedsCVIinterventions
...

7 1
Saturday fun! Ski AAC. β€οΈπŸŽΏπŸ’­πŸ’¬πŸ’ͺπŸ™Œβ€οΈ

Saturday fun! Ski AAC. β€οΈπŸŽΏπŸ’­πŸ’¬πŸ’ͺπŸ™Œβ€οΈ ...

6 2
When your daughter becomes a member of her Church. ❀️ Welcomed with the loudest applause and so much love as she made her way up to the front to join others becoming members. 

Talker on lap, instead of saying, "I do" to membership, Emma said "questions" + "Yes".

 

#becoming
#member
#churchfamily❀️ 
#FaithWeatherly
#partofthebody
#eachwithuniquegiftsandpurpose
#itmatters
#thankful

When your daughter becomes a member of her Church. ❀️ Welcomed with the loudest applause and so much love as she made her way up to the front to join others becoming members.

Talker on lap, instead of saying, "I do" to membership, Emma said "questions" + "Yes".



#becoming
#member
#churchfamily❀️
#FaithWeatherly
#partofthebody
#eachwithuniquegiftsandpurpose
#itmatters
#thankful
...

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It is moments like these that remind me why it matters for our family to be part of a community. Why our children need to be present, to be seen and heard.

I just got this text message from a sweet, sweet family from our church. They ALWAYS include Emma and we chat with them after each Sunday service.

If Emma wasn't a ~ visible ~  part of this congregation, if she wasn't accepted so beautifully by this whole family, this sweet Kindergartener wouldn't have had these private thoughts, shared with her Mom on a Thursday morning at school drop off.

Being there matters. It is literally the first step. It can be hard. It can be hard for others. Do it anyway, because being seen matters. Advocacy isn't always easy. Do it anyway. Talk about your child, about how she lives her life so that others can understand who she is.

We recently changed churches because we wanted Emma to be a part of the congregation. We are so grateful for the loving congregation we have found. Who love and welcome Emma for who she is. On Sunday, she will be joining this church as a full member, as an individual, not as our adult child.

Being accepted as part of your community matters, for everyone. It changes people's hearts and minds when they have an opportunity to get to know an individual with a disability. 

This message was such a gift to my heart this morning. 

❀️ This is what love looks like to me. ❀️

It is moments like these that remind me why it matters for our family to be part of a community. Why our children need to be present, to be seen and heard.

I just got this text message from a sweet, sweet family from our church. They ALWAYS include Emma and we chat with them after each Sunday service.

If Emma wasn`t a ~ visible ~ part of this congregation, if she wasn`t accepted so beautifully by this whole family, this sweet Kindergartener wouldn`t have had these private thoughts, shared with her Mom on a Thursday morning at school drop off.

Being there matters. It is literally the first step. It can be hard. It can be hard for others. Do it anyway, because being seen matters. Advocacy isn`t always easy. Do it anyway. Talk about your child, about how she lives her life so that others can understand who she is.

We recently changed churches because we wanted Emma to be a part of the congregation. We are so grateful for the loving congregation we have found. Who love and welcome Emma for who she is. On Sunday, she will be joining this church as a full member, as an individual, not as our adult child.

Being accepted as part of your community matters, for everyone. It changes people`s hearts and minds when they have an opportunity to get to know an individual with a disability.

This message was such a gift to my heart this morning.

❀️ This is what love looks like to me. ❀️
...

10 3
Evidence-Based Approach to AAC for CVI published in AJSLP!

https://seecvispeakaac.com/emmas-system-see-cvi-speak-aac-becomes-a-clinical-focus-in-ajslp/

Evidence-Based Approach to AAC for CVI published in AJSLP!

https://seecvispeakaac.com/emmas-system-see-cvi-speak-aac-becomes-a-clinical-focus-in-ajslp/
...

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