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Follow us on Insta (or Facebook if that’s your preference) to see what is happening in our world of See CVI, Speak AAC, where we share quick shots of communication exchanges, advocacy, and build outs.

We've been a bit quiet on social media the last fe

We've been a bit quiet on social media the last few months because of all the incredible research we are engaged in. How exciting is that?!?

Want to know what is even more exciting??? YOU CAN BE A PART OF IT!

One study is on using AI to translate body-based movements into speech output. Yup, you read that right! You can read a bit more about that here: Learn more at our study website here:
https://sites.psu.edu/aiinaac/

Contact our study PI at: kmw22@psu.edu

Emma provided our proof of concept in May, and we have presented this research at ASHA in December and at ATIA in January. It was there, at ATIA, that we collected our first participant data, analyzed it and are ready to open the study up to others now.

Want to learn more? Want to learn how to be a part of this paradigm shifting research?? Check out the flyers below (one for individuals ages 7 - 17, another for adults) and reach out to our Primary Investigator (info on flyer).
So excited for the future! Join us in developing it, won't you???

#AI
#AIinAAC
#researchstudy
#cvi
#motordisabilities
#aac
#seeCVIspeakAAC

Join us to discuss CVI and AAC! Thank you @thinksm

Join us to discuss CVI and AAC! Thank you @thinksmartbox for continuing to shine a light on accommodations in AAC for individuals with CVI.

Monday, Feb 24th at 9 am, join us to discuss AAC a

Monday, Feb 24th at 9 am, join us to discuss AAC and CVI. Thank you, Smartbox, for continuing to highlight the importance of addressing the specific needs of AAC users with CVI.
https://www.instagram.com/p/DGAu78_NWJR/?igsh=aXZqZW5hb2UzYWF4

Also at ASHA! 4566L: Maximizing Access to AAC Thr

Also at ASHA!

4566L: Maximizing Access to AAC Through Use of AI to Detect and Interpret Natural (Unaided) Gestures (Technical Research (In-Person))

We have been working on some incredible NEW technology. This is the first time we are presenting how we have teamed to make body-based movements become speech output messages. With a device about the size of an Apple watch, a custom algorithm and an Android device, individuals who require AAC and/or the assistants can tag videos capturing their movements and to be recognized and then communicate their meaning to those with whom they are engaged. We were so excited to have Emma be the individual to test and then prove out the model. A paper about this research is currently in under revision and due out soon. See it live at ASHA!

Come to learn more about how we are working to bridge the gap between body-based communicate and speech generating devices. And, see a live demo too!

Presenting Authors:
Krista Wilkinson, Pennsylvania State University
Dawn Sowers, Pennsylvania State University
Lynn Elko, See CVI, Speak AAC
Kevin Williams, ISAAC

Author Only (Not Presenting)
Syed Billah, Pennsylvania State University
Tanuj Namdeo, Pennsylvania State University

Are you headed to ASHA? Will we see you there???

Are you headed to ASHA? Will we see you there???

Our 2 hour invited short course on AAC for CVI is chock full of info and current case studies we have ongoing utilizing the framework in our paper. We will be sharing how the framework was developed and then illustrating how we are using it to tailor systems for children with CVI who need AAC.

Hope to see you there!

Note: Short courses require individual registrations which can be added onto your current conference registration.

Location: CC/Arch-800 Pike/800 Pike-Skagit 2 (Lower Lvl)
Date: Friday, Dec 6 8:00 AM
Duration: 2 hours
Format: 2-Hour Short Course (In-Person)
Code: SC19
PDH(s): 2 Hrs

Presenting Authors:
Krista Wilkinson, Penn State University
Lynn Elko, See CVI, Speak AAC
Tara McCarty, Penn State University
Dawn Sowers, Penn State University

Keep it rolling! This freshly out too in AAO, writ

Keep it rolling! This freshly out too in AAO, written by NEI. Halleluiah!

https://www.aaojournal.org/article/S0161-6420(24)00559-1/pdf

The ever-elusive diagnostic code:

"This new definition is an important first step that will facilitate agreement around diagnostic criteria and international classification of disease."

Identifying and enumerating those affected 😊 awareness and funding) + research around identifying personalized evidence-based accommodations:

"Building on this new working definition of CVI, the NEI is developing a participant registry that will collect clinical, imaging, and other data from consenting individuals to support future retrospective or prospective research. We hope this will eventually lead to advances in CVI diagnosis and management, such as personalized evidence-based accommodations and education plans to help children better reach their full potential."

We've waited (pushed) a long time for movement on

We've waited (pushed) a long time for movement on CVI. Happy to share fresh digital ink on that movement. Many thanks to all who are pushing the rock uphill to improve the lives of our children.

From the American Academy of Pediatrics: Clinical Report
Diagnosis and Care of Children With Cerebral/Cortical Visual Impairment: Clinical Report

https://doi.org/10.1542/peds.2024-068465

And the NIH (a working definition of CVI):

https://www.nih.gov/news-events/news-releases/nih-led-scientific-team-defines-elements-brain-based-visual-impairment-children?fbclid=IwY2xjawGri1hleHRuA2FlbQIxMQABHW__a4kbgk6iaoo0mcqXOe3za-eFQ38TqPk7oSGlg2zPh2O92g6esK2mpg_aem_S2w6F7DK40buHdLHIddddQ

Did you register to win 1 of 2 tickets to Innovati

Did you register to win 1 of 2 tickets to Innovations in CVI from @pcvis.vision?? Didn't miss your chance, drawing closes on August 16th!

Hope to see you in Pittsburgh!
#CVI
#CVIresearch
#CVIadvocacy
#CVIprofessionaldevelopment
#seeCVIspeakAAC

Fork iterations over time... What does adapt unti

Fork iterations over time...

What does adapt until you achieve look like in real life? Here's what we've tried over the past 5 years. Crazy, huh?? We've been trying like mad over the last 3 years especially.

Grateful for a collaborative OT who joined us, and kept us too! 😂 I know I ask a lot of questions, want to try a lot of things, some of them quite unique. 😉

We've found an OT who thinks outside of the box, and we are so thankful for her (cheers to you, Catherine!!). And Steph before her for 15 years, also an amazing OT!! How blessed are we to find creative providers?!? VERY and we know it!! 🤩❤️🙌🥰

#adaptedlife
#adaptedADLs
#OT
#seeCVIspeakAAC
#seeCVI
#hnrnph2
#livedifferently

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