Insta Feed

Follow us on Insta to see what is happening in our world of See CVI, Speak AAC, where we share quick shots of communication exchanges, advocacy, and build outs.

Reducing keyboard complexity for our girl. Top: K Reducing keyboard complexity for our girl.

Top: Keyboard as purchased.
Middle: Fully masked.
Bottom: Targeted letters in this Making Words set.

#ComprehensiveLiteracyForAll
#MakingWords
#AdaptedPencil
#cviAdaptations
#seeCVI
#complexity
#10charateristics 
#RomanLantzy
#seeCVIspeakAAC
#cricut

Reducing keyboard complexity for our girl.

Top: Keyboard as purchased.
Middle: Fully masked.
Bottom: Targeted letters in this Making Words set.

#ComprehensiveLiteracyForAll
#MakingWords
#AdaptedPencil
#cviAdaptations
#seeCVI
#complexity
#10charateristics
#RomanLantzy
#seeCVIspeakAAC
#cricut
...

We're going for it! We worked through the teaching We're going for it! We worked through the teaching letters lessons and found good alphabet knowledge so we are moving on to teaching words. 😀 

In an attempt to teach the keyboard too, we are paring these lesson, which focus on a small number of letters grouped across lessons with this masked keyboard to manage the complexity of all those letter together.

Because we BELIEVE that ALL learners CAN learn to READ.

#comprehensiveliteracyforall 
#corticalvisualimpairment
#seeCVI
#complexity
#ChristineRomanLantzy
#seeCVISpeakAAC
#alternativepencil
#cricut

We're going for it! We worked through the teaching letters lessons and found good alphabet knowledge so we are moving on to teaching words. 😀

In an attempt to teach the keyboard too, we are paring these lesson, which focus on a small number of letters grouped across lessons with this masked keyboard to manage the complexity of all those letter together.

Because we BELIEVE that ALL learners CAN learn to READ.

#comprehensiveliteracyforall
#corticalvisualimpairment
#seeCVI
#complexity
#ChristineRomanLantzy
#seeCVISpeakAAC
#alternativepencil
#cricut
...

Did you know???

People call CVI a low incident disability. But, it's the #1 visual impairment in school aged children.

Not so low incident then, is it?

And most certainly NOT low impact.

CVI impacts EVERY ASPECT of a child's life.

Want to learn more?

Visit www.pcvis.vision for some amazing resources and follow Start Seeing CVI for a real life look into the life of CVI.

💪❤️💪
...

Almost GO time! Presenting live at the American Co Almost GO time! Presenting live at the American Conference of Pediatric Brain-Based Visual Impairment/CVI soon!

Hope to see some of you there. I have missed my CVI family so much!!

#seeCVIspeakAdvocacy 
#seeCVIspaekAAC 
#cvi
#virtual
#BrooksRunningShoes

Almost GO time! Presenting live at the American Conference of Pediatric Brain-Based Visual Impairment/CVI soon!

Hope to see some of you there. I have missed my CVI family so much!!

#seeCVIspeakAdvocacy
#seeCVIspaekAAC
#cvi
#virtual
#BrooksRunningShoes
...

If you're in the market for Assistiveware apps, ge If you're in the market for Assistiveware apps, get them soon during their 50% off week!! 

This month many AAC companies participate in awareness month by discounting thier apps. 

Be on the lookout for special dates by each company!

If you're in the market for Assistiveware apps, get them soon during their 50% off week!!

This month many AAC companies participate in awareness month by discounting thier apps.

Be on the lookout for special dates by each company!
...

So excited to share new research studies on CVI an So excited to share new research studies on CVI and AAC!!

Penn State University is continuing their study into AAC with a specific interest in how CVI impacts use.

📣📣📣 Parents!!! 📣📣📣

Please respond to Tara. I am excited to share this line of study is a multi-year commitment!!

We've been asking, pleading, for people to hear our cries for help for our kids and I can't be more excited to say the choir of our voices is finally being heard!!

Reach out to Tara, who is working with Dr. Krista Wilkerson at Penn State, one of the co-authors of the study in collaboration with The Bridge School, which was just published.

Things are starting to move!!!

Find Tara at tva5012@psu.edu.

💪❤️💪

So excited to share new research studies on CVI and AAC!!

Penn State University is continuing their study into AAC with a specific interest in how CVI impacts use.

📣📣📣 Parents!!! 📣📣📣

Please respond to Tara. I am excited to share this line of study is a multi-year commitment!!

We've been asking, pleading, for people to hear our cries for help for our kids and I can't be more excited to say the choir of our voices is finally being heard!!

Reach out to Tara, who is working with Dr. Krista Wilkerson at Penn State, one of the co-authors of the study in collaboration with The Bridge School, which was just published.

Things are starting to move!!!

Find Tara at tva5012@psu.edu.

💪❤️💪
...

#advocatelikeamother

Fun that these two photos popped up in memories today together.

But, please, don't take my photo with you Mom. 🤣

Nonetheless 💪❤️💪

#advocate
#thatsmygirl❤️
#seeCVI
#hnrnph2
#rarelove
...

I feel like we've waited a lifetime for this.

Thank you, Drs Blackstone, Luo, Canchola, Wilkerson and Roman-Lantzy for conducting and publishing this study.

And to do the families, therapist, professors and teachers who participated. Each of you laid a brick on the road which will lead to more of our kids with CVI gaining access to robust communication systems which meet their unique and specific needs.

To great things for our kids in the future!!!!

#seeCVIspeakAAC
#cviaac
#cviaccess
#itsreal_itmatters_AACaccomodationsCVIspecific
#published
#hallelujah
...

Commenting.

It's so important for our AAC users to be able to express themselves beyond their wants. We have been working on this for a while. We usually hear about "like" but "don't like" is just as important!

We have a lot of hard stuff headed our way. I was so proud of my girl, she had an IV placed, was hungry and frustrated with a two hour procedure delay.

"I don't like it."

Did you catch that???

"Hey!"
"Hey!"

I hear you, babe. Me either. I don't like this for you.

"hello"

Thanks for being polite to the nurse, you're an awesome girl.

💪❤️💪

#don't like
#powerofcommenting
#seeCVIspeakAAC
#butbepolite
...