Follow us on Insta to see what is happening in our world of See CVI, Speak AAC, where we share quick shots of communication exchanges, advocacy, and build outs.
Almost GO time! Presenting live at the American Conference of Pediatric Brain-Based Visual Impairment/CVI soon!
Hope to see some of you there. I have missed my CVI family so much!!
#seeCVIspeakAdvocacy
#seeCVIspaekAAC
#cvi
#virtual
#BrooksRunningShoes
If you're in the market for Assistiveware apps, get them soon during their 50% off week!!
This month many AAC companies participate in awareness month by discounting thier apps.
Be on the lookout for special dates by each company!
So excited to share new research studies on CVI and AAC!!
Penn State University is continuing their study into AAC with a specific interest in how CVI impacts use.
π£π£π£ Parents!!! π£π£π£
Please respond to Tara. I am excited to share this line of study is a multi-year commitment!!
We've been asking, pleading, for people to hear our cries for help for our kids and I can't be more excited to say the choir of our voices is finally being heard!!
Reach out to Tara, who is working with Dr. Krista Wilkerson at Penn State, one of the co-authors of the study in collaboration with The Bridge School, which was just published.
Things are starting to move!!!
Find Tara at tva5012@psu.edu.
πͺβ€οΈπͺ
#advocatelikeamother
Fun that these two photos popped up in memories today together.
But, please, don't take my photo with you Mom. π€£
Nonetheless πͺβ€οΈπͺ
#advocate
#thatsmygirlβ€οΈ
#seeCVI
#hnrnph2
#rarelove
I feel like we've waited a lifetime for this.
Thank you, Drs Blackstone, Luo, Canchola, Wilkerson and Roman-Lantzy for conducting and publishing this study.
And to do the families, therapist, professors and teachers who participated. Each of you laid a brick on the road which will lead to more of our kids with CVI gaining access to robust communication systems which meet their unique and specific needs.
To great things for our kids in the future!!!!
#seeCVIspeakAAC
#cviaac
#cviaccess
#itsreal_itmatters_AACaccomodationsCVIspecific
#published
#hallelujah
Commenting.
It's so important for our AAC users to be able to express themselves beyond their wants. We have been working on this for a while. We usually hear about "like" but "don't like" is just as important!
We have a lot of hard stuff headed our way. I was so proud of my girl, she had an IV placed, was hungry and frustrated with a two hour procedure delay.
"I don't like it."
Did you catch that???
"Hey!"
"Hey!"
I hear you, babe. Me either. I don't like this for you.
"hello"
Thanks for being polite to the nurse, you're an awesome girl.
πͺβ€οΈπͺ
#don't like
#powerofcommenting
#seeCVIspeakAAC
#butbepolite
Headed off for our last run today... A drive by wave.
Can you find the CVI adaptation on her bi-ski???
#seeCVI
#skiCVI
#adaptedsports
#biski
#mountainman
#seeCVIspeakAAC
#shred
#biski
#adaptive
#adaptivesports
#PCAS rocks and so does this girl!!
Sometimes a stretch is what is needed.
We have been in a cycle of frustration with learning activities. Happens, right??? π€ππ
Yesterday I thought a shot at theπ was worth trying since we've been stuck.
Whooohooohoooooooo!!! Felt like we struck gold!!!
Just like that, smarty pants strutted out her number knowledge, identifying quantities correctly with the Numicon shapes.
Today, she again accepted the challenge.
Kicking 2020 to the curb like it's nobody's business! ππͺ#πͺπ
#seecvispeakaac
#numicon
#believe
#secretlysmart
#shootforthemoon