Follow us on Insta to see what is happening in our world of See CVI, Speak AAC, where we share quick shots of communication exchanges, advocacy, and build outs.
CVI is like the opposite of that magic trick, "Now you see it... Now you don't!"
Without adaptions and accommodations, CVI kids can't "see" things and then, with them, they can.
I LOVE removing color highlighting/anchors. When I do, it means that I know that I know, that SHE knows it.
Because, where she didn't "see" it, now she does. Here, there, everywhere, Emma knows to look for the handle of a toilet.
On the right, on the left, up high or on the side, she has learned what it is, that the shape and location can vary... and sometimes not even be there (automatic sensor), but a toilet needs to flush after use and she's on the lookout, searching for the flusher (visual curiosity).
We are loving Phase III! While academic learning is still a labor requiring effort to use detailed, ventral stream vision, all the time and energy put into USING VISION for so much across her day has truly paid off. With that increased use of vision, Emma has more functional vision available for her to learn, not just academically but in all of her life.
She makes me proud. ♥️
A day at duPont in September means you wear #theCVIshirt! Yesterday was Emma's first visit to duPont out of her wheelchair, using her white cane. 🙌
At orthopedics, the sweet lady who usually checks is in was surprised to see her without her chair. Literally, "Wow, I'm not used to seeing Emma out of her chair." ♥️ First time.
It was cool to hear her doctors comment on seeing her walking outside of the exam room and center. "I saw you guys walking into the hospital..." "I watched Emma walk down the hall..."
See CVI. See how a white cane gives a child with CVI independent ambulation. See her CVI adapted AAC. See her, see her CVI, see how she CAN when properly supported.
And, even when you can't wear your shirt while in your gown, you can make sure people #startseeingcvi! 💪♥️💪
And, of course, tell Mom what you want... All. Day. Long. 😆. Thought you'd enjoy hearing it too. 😉. Welcome to my world. 😘
Oh, and this awesome kid, when I pulled off the road to verify on of our target words for full understanding on our way home (places), after starting that we were going (places) home, said "bathroom. Home bathroom! 😄. Yes, but can you please hold on for 10 minutes, well be there soon! And, success, friends!! From leaving the hospital, eating dinner in the car (2 Nesquicks!!) and a two hour car ride, girlie made it home and took us to the bathroom. 🙌💯🙌
Then saw Dad, went to Chat + Greetings + Hello + Dad. Killing it this week!!! 😁🥳🥰
Who can relate?!? The unexpected [yet long and laborious road to a] break through!!
The shock and thrill of a communication exchange for a bathroom run which would interupt the recently awarded iPad free time.
THIS has been THE THING which has stood in the way of full toileting success.
I was just moaning about it today when I was asked what was working for us. That this was the hurdle we couldn't seem to overcome though we've had so much success otherwise.
So. Freaking. Exciting!!!!!! You go girl!!! (literally... hahaaaa!!!)
(photo recreated because who actually could have figured THIS would have happened right then. 😉🙌😁)
Leading the way out of the therapy center. I can hear her thinking, "You coming, Mom? I've got my words, you've got the keys. We're out of here!"
Love this girl!
Working that white cane constant contact style. From Crocodile and Human Guide to White Cane in less than 9 months. 🙌
As a CVI Mom, I've come to accept the fact that nearly EVERYTHING needs to be adapted.
And, finding creative ways to provide access to learning is absolutely necessary.
That means black spray paint, Sharpies, black clothing, black backgrounds, black tables, black...
Can our CVI kids do without all that black? Sometimes, yes. In familiar settings with familiar objects, people, activities, often.
But when "working" or learning, doing things which are visually taxing, the reduced visual complexity of a simple black backgrounds offers almost a respite to visual system. So why wouldn't we, right?
Just because you can physically manage to read a textbook while sitting in a noisey cafeteria, is that how you study? 🤔
If you were working on something hard, you'd likely look for a quiet nook in the library.
That's what black helps to do for our CVI kids.
Is it messy to do? Sometimes. Does it take more time to prep materials and spaces? Typically.
But, oh the rewards, my friends!
Access leads to ... acquired skills... accomplished goals... academic learning... and so, so much more.
So, bring on the black, reduce the complexity, give access and watch our kids SOAR!
Next new game... Cranium's Cariboo!
First whack at reducing the complexity of the Caribou game board. With some tweeks, this'll work! Once this template gets squared away, off to vinyl on the Cricut.
I'd love to spray paint the whole board black, but I'm hopeful that we can get to the point that this board can be tolerated without adaptations eventually. (Last image shows the side of the game board... We'll see how that goes!)
So many possibilities with this board! Thanks ebay for making this possible. 🤣
Have game, will travel!
A lunch visit to Dad's office is an opportunity to share our fun.
Thanks to this awesome group of peeps!! They're always ready to jump in to help Em build her skills and socialize. Love them!! xoxo
If you ever wondered what the O in O&M was for... 😉 Thankful for bumpers and a light touch... Sorry white car!! PS, I checked, no damage. Whew! ...
For whoever needs this... I know I did. ❤️ ...